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Letter to The Argus:       Supporting photodynamic therapy treatment (PDT)

 

As a former Director of the East Sussex Association for the Blind, I am appalled at the Government refusing to explain why there is a delay in providing photodynamic therapy treatment (PDT) for the "wet" form of age related macular degeneration.  The National Institute of Clinical Excellence (NICE) approved the use of PDT in September 2003.  Macular degeneration is the most common cause of blindness in the elderly and results from the overgrowth of capillaries in the retina.  This distressing condition effects 250,000 people in the UK, but only 5,000 -7,000 a year are thought to benefit from treatment with PDT.  This is simply not good enough.

It was this Labour Government who brought in NICE saying that it would improve the quality of health care because treatments would be evaluated for their effectiveness.  So once the institute has made a decision, why aren't the patient's being treated?  The cost of the treatment, using a laser and chemical, costs £900 a time, the bill for treating 2,800 patients would be £2.5 million.  With all the money the Government claim is going into the NHS where has it all gone?  I agree with the RNIB who say: "The Government are dragging their feet and have absolutely no excuse in still not allowing PDT treatment to be made available on the NHS. There is no shortage of doctors that we are aware of who could provide treatment. On the contrary, we know of 50 centres around the country that can provide people with treatment who otherwise may go blind. The situation as it stands is a sham."

 

Link to East Sussex Association for the Blind site    

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